my article

The other day, Alun asked me to email to PDS.
Alun is a Webmaster of YPN.
According to him, they would like me to write an article for their Parkinson magazine.
I said OK and wrote that.


At first,I wrote my disease history by order,then I rewrote focusing the theme titled "My happiness." My forty years since aged 17,have been not easy at all.
But I have big pleasure compensating for the loss by PD,at the same time.

The first happiness is my marriage.
The second is commitment to a patient activity which is a vocation for me because I have never had occupation on account of disease
The final is the availability of dopamine agonists.

I wrote this with help from my friend,poppo-chan.
She helped me with pleasure,she said.
Thanks a lot,poppo-chan!

your future must be better

This is my photo at Glover Garden in Nagasaki.
As you look, I can climb up and walk.
My spine seems to be straight.(Actually that is bent a little.)
Even if I sometimes fall down,I can say my condition is good considering my disease history.
Different from late 1960s or 1970s,now, there are many good medicines (even DBS.)
To the patients before long, I can say "Your future condition must be better than my current condition."
Honestly speaking, I feel envious and lonely.

Ma jeunesse

From aged 17 to 25,I had had difficulty walking.
When I was aged 25,I began to take medicine so that walking was not difficult for me.
I could go to cinema, rock music concert with my husband.
Those time was my jeunesse in my late 20s.
I watched a lot of cinema and saw many concerts,David Bowie, Rod Stewart, Status Quo, Rory Garagher,Led Zepelin, Bob Dylan and so on.

At the time,I was living near the temple where the grave of Rintaro(Ougai) Mori and Osamu Dazai are.
They were famous and great Japanese writers.
This photo is the apartment house where I lived with my husband and a slamese cat.

a family disease

PD changes not only patient's life but also one's family's life.
Once my husband said that my disease had changed his life, he might live the other life.
Another tme, he said that walking was free and enjoyable, but walking with me, the pleasure of walking was denied.

He is reasonable,even I want to say so for my disease.
His words aren't for me and are for my disease.

From the beginning of disease, one had better think PD a family disease.

going to Nagasaki

Nagasaki is in Kyusyu, the island located the southern west part in Japan.
During Edo era, it's the only place alloweded to carry on foreign trade in Japan.
Therefore Nagasaki is a exotic still now.

I will go to see my friend whose husband is a patient.
Last year, I met her twice, Nagasaki and Dublin.
She lives in Germany, teachs Japanese language and comes back to her mother's place every July.

I'll go there with my husband and so I have no anxiety to travel.
That is a four-day three-night trip.
Bye for now!